Sunday, 1 June 2014

help please..........

We've had a busy evening last night sewing til about 8.30 before heading in for dinner.............everyone is doing really well..........more pics later and I have been trying to get around some blogs....you have been doing lots of posts and we still have people commenting who are joining in so keep checking the comments to see whos joining in the fun.................



just wondering if you could help with something please...............I don't usually post private family matters but some of you know this already...........my sister asked if I would post this.......
She has pancreatic cancer and the drugs she is on are not covered by the PBS (medicine subsidy scheme in Australia). She has been having chemo (3 weeks on 1 week off) for over 2 years now......one of the good drugs she is using and is really helping her is ABRAXANE................
It has been a great benefit to her............the first 8 weeks costs her about $10,000...................
If you have breast cancer you can have it at a low cost on the PBS but if you have pancreatic cancer you can't...........
There is a petition to take to the Government to get this drug available on the PBS for Pancreatic cancer patients too or any other cancer it may help not just one type.......
Can you please spread the word on you emails, facebook etc and sign the petition..........
they need more signatures to take it to government.............
who knows you may be the next person to needs this drug or someone you love........
I found this article to read too...........
.........take care til next time.....Chookyblue.........

45 comments:

Peg - Happy In Quilting said...

Just signed......xxx

Peg - Happy In Quilting said...
This comment has been removed by the author.
Peg - Happy In Quilting said...
This comment has been removed by the author.
Kate said...

Signed x

Sue SA said...

Just signed, happy to help as we have a friend with pancreatic cancer at present and my brother is post chemo for testicular cancer, six months. Nobody has the money to pay the real price of drugs over the course of their treatment. R and D is expensive - we need to subsidies these drugs for everyone.

Salley said...

Signed. That there is discrimination between types of cancer is appalling.

Jacqueline Morris said...

Oh this is just terrible to read... I cannot believe there is such a discrimination between types of cancers. I mean its bad enough coping with things then to find out this... just terrible. I believe that all cancer patients should receive free treatments and medications... thinking of individuals well-being its a disgrace they are not free... and free in ALL countries. I live in UK so I think the system is slightly different. I am more than happy to help so will gladly sign your petition and post awareness on my blog :)

Michelle said...

Signed, my mum is in a similar position she was on a trial drug which helped put her into remission, her best chance to stay that way is on a maintenance dose but now that it's approved you can only get if the disease is progressing and not if you've already been on it. She has it supplied from the company on compassionate grounds but it took a lot of phone calls letters etc from doctors, professors and family but we were lucky and the company is understanding.

Fiona said...

of course I will sign it.... hugz to all..
Hugz

Queen Of The Armchair aka Dzintra Stitcheries said...

Done xo

Susan said...

Signed - what a struggle.
Hugs
and I'll post it too.

Ann said...

Signed for your family and the many others fighting this terrible disease! Sending big hugs your way xox

barb's creations said...

Just signed :) Barb.

KERYN B said...

Just signed. Is there anything we can do to help your sister?

Christine M said...

Done!

Joy McD said...

Wow, that is an amazing difference in price and certainly not fair... will go and check the links out xxx

wish2stitch said...

Just signed the petition. Hope it makes a difference.

retdairyqueen said...

Happy birthday to the Chook shed and off to sign now xx

kiwikid said...

Signed Chooky, what discrimination, it is criminal!!
positive thoughts to your sister.
xx

Melody said...

Off to sign now and I'll write to the Health Minister tomorrow. I'm off to visit my mum and dad today but I'll blog about my sewing tomorrow.

Anita : Shabby Quilt said...

Done xoxoxo

Tania said...

Signed xxx

Jo in TAS said...

Signed and shared petition on facebook. It's shameful the difference in costs, it shouldn't discriminate between cancers.

Pinnylea Creations said...

Signed xxx

Yvonne W said...

I have just signed it, Chooky. All the best for your sister.

Jill H said...

Have just signed. Best wishes for your sister and your campaign.

Teresa said...

Thank you for having me at your party Chooky... I am off to sign the petition xx

Tracy said...

Will sign and share.

Anita said...

That's ridiculous! Have signed and shared on Facebook. Now come on... I want to see some pics.....I can't sew so I want to know what you are all doing!!

Cheryll said...

Maybe we WILL make the difference! I'm off to sign xox

Brenda said...

Signed and shared.

Jindi's Cottage said...

What a ridiculous situation…this is discrimination, cancer is cancer and if this medication helps what does it matter which part of the body is affected…idiot bureaucrats! Will be signing...

Jindi's Cottage said...
This comment has been removed by the author.
gracie said...

Me Myself and I did manage to sew for your party...hope you get to stop by and see my mug rug. I am sure you are all having a great time.

Sue Niven said...

I just signed, I wish her all the best. xxx

Kaisievic said...

Just signed - best wishes to your sister.

DebraKay Neiman said...

Just signed - prayers for your sister.

Susie said...

Done and thank you for highlighting this injustice to us. Wish your sister and your family all the very best as you battle through this journey.

e said...

I'm in the U.S., so I don't think my signature will do you any good. I will, however, prayer that reform takes place and that God rests His healing hand on your sister.
Wishing you all the best.

Nanette said...

I have signed, let's hope people power works to get some very important changes happening. Thanks for visiting my blog as part of your Sewing Party, it's wonderful you are visiting everybody who signed up. Hope your weekend party was wonderful.

Jan said...

Signed - what a ridiculous situation, cancer is cancer and there should be no discrimination. Best wishes to your sister and family, serious illness is hard on everyone. Your party looks like such good fun, Chooky, sorry, but I ended up not celebrating or sewing as I was sick at the weekend and my mojo has gone missing...

Jenny M said...

Just signed. Wishing your sister all the best.

creations.1 said...

I have shared it on my blog and off to sign it now! How typically stupid of our government - cancers might be in different places but they wreak the same havoc no matter where they are.

Beeshebags said...

Signed and shared on fb

Raewyn said...

Yes, I've signed - hope they accept the 'non Australian signature. Best wishes to your sister and family.